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"The whole model of cancer drug discovery is broken and in need of help"
Professor Paul Workman, Chief Executive and President of the Institute of Cancer Research
Pharmaceutical companies are not to blame for this - they are doing what commercial organisations are supposed to do; act in the best interests of their shareholders.
The blame lies with us; with Society. We have placed the responsibility for developing cures for our most deadly diseases into the hands of organisations motivated primarily by profit rather than public health and have failed to put in place regulations or incentives to protect public health interests.
Changes We Want To See
Overhaul Cancer Drug Development
We are campaigning for the UK Government to tackle failures in the system for developing cancer drugs that have led to:
- a failure to curb excessive profit margins on drug prices, leading to drugs being priced out of reach of patients;
- a failure to attract investment in promising discoveries with limited commercial potential, or to provide alternative public funding;
- a failure to reward development of drugs with greater therapeutic benefit, in order to speed up progress.
All of these issues have arisen due to the conflicting needs of the pharmaceutical industry, which we rely on to develop cures, and the patients who need them - put simply, wealth vs health.
We are calling on the UK Government to:
acknowledge the conflicting goals of those developing cancer drugs and those who need them
better regulate the pharmaceutical industry to protect cancer patients' interests
ensure that cancer drug prices reflect costs and the public contribution to their discovery
find ways to reduce the costs of bringing new cancer drugs to market to ease prices
publicly fund promising cancer treatments that fail to attract private investment
work with the World Health Organisation to consider alternative drug development models
to work with other countries to agree a goal and timeframe to cure the majority of cancers
Please sign our petition calling on the UK Government to reform the whole process for developing cancer drugs, so that it focuses on maximising benefits for patients rather than profits. This is the single most important thing you can do to help.more
This issue is probably the single biggest obstacle to beating cancer sooner, so please help us to raise awareness of it as widely as possible by sharing the link to this website with your friends and family. The more awareness we can raise, the more hope there is for change.
Do you have expertise that you can offer to help the campaign? We need help with promotion, lobbying, research and funding to help build awareness and get our message across, as well as with the day to day running of the campaign.
When we give money to cancer research charities like Cancer Research UK we expect that money to be used efficiently but less than 2% is likely to be spent on researching new drugs that can be given to NHS cancer patients as a routine treatment.
Barely a month goes by without a newspaper headline hailing the latest “Major cancer breakthrough”, but dig beneath the media hype and you’ll discover the shocking reality that new cancer drugs for most cancers are only expected to improve patient survival by just 2.7 months on average.
Half of new cancer drugs are too pricey for the NHS due to profiteering by drug companies. The Government is choosing to leave patients to die early rather than exercise its legal powers to obtain the newer, more effective drugs from a cheaper alternative source.
Shocking new evidence has come to light of massive profiteering from cancer drugs - one cancer drug that costs only £99 to make is being being sold for up to £83,000, despite R&D costs being paid back over 10 years years ago.
The British public pays £2.5bn a year towards the cost of developing new drugs for cancer, but 95% of cancer research discoveries don't work in patients and half of the 5% that do the NHS can't afford. Is this money well spent?
Evidence has come to light that the public may be being misled about our progress on beating cancer and that progress is almost certainly not as good as that implied by the much touted cancer survival statistics.
The cost of developing new cancer drugs could be halved at least if we cooperated across the world to publicly fund R&D, using cheaper finance, eliminating wasteful duplication and developing drugs for public benefit not for profit.
A new medical study has found that the latest new cancer drugs are being sold for many times the costs spent developing them; resulting in mega profits for the drug companies who own them and restricted access to these drugs for only the wealthiest patients and healthcare providers.
Please write to your MP to help us get these issues discussed in parliament. It's very easy to do this online and we have a sample letter you can use if you wish.
Comments from Supporters
These are a selection comments from people supporting the campaign. Help us tell those in Government that this is an issue that people care about, which is costing lives and causing unnecessary suffering: Sign the Petition Now
Get this changed Cameron. NOW!!!!!
A cure for cancer could be within our grasp if global reforms could be made so that countries research teams could work together.
Abuse of those of us who do what we can to support charities whose money funds the research that is supposed to help those suffering.
I am despondent about the race for profits by the pharma industry in seeking new cancer breaking drugs. I also am getting cynical about the UK's cancer charities and ask myself what are they doing with the millions of pounds they attract each year?
The market is not sufficiently capable of rewarding cure or preventative treatments as well as life sustaining drugs.
It's a pity the EU don't get to grips with this serious situation instead of passing stupid laws on what we eat and what size it should be.
Its totally immoral to make these drugs so unaffordable to the masses. I'm all for researchers and companies to make a good living from developing drugs to fight diseases like cancer, but how can you justify holding the NHS to ransom to purely make immensely, excessive profits? No justification at all.
I feel this is blackmail. There is no justification for that abuse of power.
Its outrageous that cancer patients are suffering because of exorbitant prices of new drugs STOP IT NOW.
You can't put a price on someone's life. A few extra years could mean that they could watch a child grow, get married, meet a grandchild, and lots more.
A cure needs to be found that is effective, not one created for profit.
There seem to have been many cancer breakthroughs in recent years, that have flared into a bright hope before fading away without ever becoming mainstream treatment. To learn that in treating seriously ill people, profit is put before innovation and progression, has left me appalled at the sheer waste of top notch research and the charity that funds it.
My son died of cancer at the age of 25. He was diagnosed with a rare sarcoma when he was 22. His chemo was so harsh but he endured it because he wanted to live, It is immoral to make such a huge profit at the cost of lives. It must be stopped.
When we support cancer are doing just that - not for any other reason than to find cures and make our loved ones better. Forget the profiteering that may be in involve - i's not for them we do it.
My mum lays in bed dying from cancer as i type this... Utterly f***ing disgusting!!!
I object to rich companies using patent laws to rip off the sick and dying with high charges.
Why are these companies allowed to make disgusting profits? Massive wealth should not be made through illness.
Yet another case of "rip off Britain" and the indifference of the good time over paid boys in parliament.
I think it is diabolical, unfair and a damned disgrace to charge such overinflated prices for medication for people who are in need of this to save their lives. Companies charging such prices should be prosecuted as it's nothing short of robbery and fraud.
I believe those who are profiteering from the sale of these drugs at over- inflated prices have blood on their hands, much the same as any murderer. They have the means to save lives but choose not to do so. Shame on them!
There aren't even enough words for people who profit from dying people and actually cause death because they only care about money. Beggars belief it's so shameful.
Would the profiteers feel that the paper in their wallet meant anything if they themselves were at deaths door, dying from the very thing they once had the power to cure?
Absolutely shocking. Lives don't matter anymore. Consciences have been desensitised in the name of greed.
Make the industry back off. Stop this behaviour now. It is stealing our loved ones. Please I beg you with all of me to put a stop to this.
My husband was forced to have chemotherapy which he didn't want in order to get the drug he needed, which cost a lot more - the chemotherapy didn't work.
The pharmaceutical companies are putting profit before cure, basically lining their pockets at the expense of people's lives.
This is disgusting the Government needs to make a stand!!
I lost my dad 20yrs ago and my brother 3 yrs ago and now I'm going through it makes me so sick its all about money.
I watched my mother in law die a slow and painful death from ovarian cancer. I am disgusted with profits big pharma makes from the suffering of individuals
I have lost 3 immediate family members to cancer and to learn this makes me so mad...Total greed the scourge of our time now....
Dying for a Cure
is a campaign, which is calling on the UK Government to reform the whole process for developing cancer drugs, so that it focuses on maximising benefits for patients rather than profits. The campaign was started by John Piears, who lost his wife to ovarian cancer in October 2015. You can read more about John's inspiration for the campaign in our article Cancer Tug of War